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Due to system maintenance, the application system, application review by the Data Access Committee will be unavailable during the following period.
Schedule: October 5th (Mon), 2026, 9:00 - October 7th (Wed), 2026, 15:00 (JST)
We apologize for any inconvenience this may cause and appreciate your understanding.

We are currently receiving a large number of applications for data submission, and the review process is taking longer than usual.We sincerely apologize for the delay and kindly ask for your understanding. When submitting an application, we would greatly appreciate it if you could allow sufficient time for the processing.

Following a change to our organizational structure effective April 1, 2026, this division has been renamed from the "Database Center for Life Science, Joint Support-Center for Data Science Research" to the "Database Division for Life Science (DBCLS), BioData Science Initiative (BSI), National Institute of Genetics (NIG)". Where the former name still appears in the guidelines, please read it as the new name.

hum0235 Data Summary

#1．Clinical and Psychometric Tests

CRF Name CRF Description File Name  File Format（Extension）
ADAS*1 ADAS-Cognitive Behavior ADAS_AMED-Pre.csv Comma-separated values (.csv)
ADASSCORES ADAS Sub-Scores and Total Scores ADASSCORES_AMED-Pre.csv Comma-separated values (.csv)
ADSXLIST Diagnosis and Symptoms Checklist ADSXLIST_AMED-Pre.csv Comma-separated values (.csv)
ARM Diagnosis/Scan Category Assignment ARM_AMED-Pre.csv Comma-separated values (.csv)
BLCHANGE Diagnostic Summary - Baseline Changes BLCHANGE_AMED-Pre.csv Comma-separated values (.csv)
BLSCHECK Baseline Symptoms Checklist BLSCHECK_AMED-Pre.csv Comma-separated values (.csv)
CDR*2 Clinical Dementia Rating CDR_AMED-Pre.csv Comma-separated values (.csv)
CONVERSIONS Conversions Confirmed by Conversion Committee CONVERSIONS_AMED-Pre.csv Comma-separated values (.csv)
ECOG Everyday Cognition Scale ECOG_AMED-Pre.csv Comma-separated values (.csv)
EXCLUSIO Exclusion Criteria EXCLUSIO_AMED-Pre.csv Comma-separated values (.csv)
FAQ*3 Functional Assessment Questionnaire FAQ_AMED-Pre.csv Comma-separated values (.csv)
FCSRT Free and Cued Selective Reminding test (FCSRT) FCSRT_AMED-Pre.csv Comma-separated values (.csv)
FHQ Family History Questionnaire FHQ_AMED-Pre.csv Comma-separated values (.csv)
GDSCALE*4 Geriatric Depression Scale GDSCALE_AMED-Pre.csv Comma-separated values (.csv)
INCLUSIO Inclusion Criteria INCLUSIO_AMED-Pre.csv Comma-separated values (.csv)
MEDHIST Medical History MEDHIST_AMED-Pre.csv Comma-separated values (.csv)
MINT Multilingual Naming Test MINT-AMED-Pre.csv Comma-separated values (.csv)
MMSE*5 Mini Mental State Exam MMSE_AMED-Pre.csv Comma-separated values (.csv)
MODHACH*6 Modified Hachinski MODHACH_AMED-Pre.csv Comma-separated values (.csv)
NEUROBAT Neuropsychological Battery NeuroBAT_AMED-Pre.csv Comma-separated values (.csv)
NEUROEXM Neurological Exam NEUROEXM_AMED-Pre.csv Comma-separated values (.csv)
NPI12*7 Neuropsychiatric Inventory Q NPI12_AMED-Pre.csv Comma-separated values (.csv)
PDXCONV Diagnostic Summary PDXCONV_AMED-Pre.csv Comma-separated values (.csv)
PHYSICAL Physical Exam PHYSICAL_AMED-Pre.csv Comma-separated values (.csv)
PTDEMOG Participant Demographic Information PTDEMOG_AMED-Pre.csv Comma-separated values (.csv)
RECFHQ Family History Questionnaire Subtable RECFHQ_AMED-Pre.csv Comma-separated values (.csv)
REGISTRY Registry REGISTRY_AMED-Pre.csv Comma-separated values (.csv)
TREATDIS Early Discontinuation and Withdrawal TREATDIS_AMED-Pre.csv Comma-separated values (.csv)
VITALS Vital Signs VITALS_AMED-Pre.csv Comma-separated values (.csv)

※1：Rosen WG, Mohs RC, Davis KL. A new rating scale for Alzheimer's disease. The American Journal of Psychiatry. 1984;141(11):1356–1364. PMID 6496779

※2：Hughes CP, Berg L, Danziger WL, Coben LA, Martin RL. A new clinical scale for the staging of dementia. Br J Psychiatry. 1982 Jun;140:566-72. PMID 7104545

※3：Pfeffer RI, Kurosaki TT, Harrah CH, Chance JM, Filos S. Measurement of functional activities in older adults in the community. J Gerontol. 1982;37:323–329. PMID 7069156

※4：Yesavage JA, Brink TL, Rose TL, et al. Development and validation of a geriatric depression screening scale: a preliminary report. J Psychiatr Res. 1982-83;17(1):37-49. PMID 7183759

※5：Folstein, MF; Folstein, SE; McHugh, PR (1975). ""Mini-mental state". A practical method for grading the cognitive state of patients for the clinician". Journal of Psychiatric Research 12 (3): 189–98. PMID 1202204

※6：Hachinski VC. Multi-infarct dementia: a cause of mental deterioration in the elderly. Lancet. 1974;2:207–9. PMID 4135618

※7：Cummings, J., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D. A., & Gornbein, J. (1994). The Neuropsychiatric Inventory: Comprehensive assessment of psychopathology in dementia. Neurology, 44, 2308-2314. PMID 7991117

#2．Biochemical Tests

CRF Name CRF Description File Name  File Format（Extension）
APOE ApoE Genotyping APOE_AMED-Pre.csv Comma-separated values (.csv)
BLOOD Perpheral Blood BLOOD_AMED-Pre.csv Comma-separated values (.csv)
CSF Cerebrospinal Fluid (CSF) CSF_AMED-Pre.csv Comma-separated values (.csv)

#3．MRI scan

#3.1 Quality Control

CRF Name CRF Description File Name  File Format（Extension）
MRIQC MRI Scan Information MRIQC-AMED-Pre.csv Comma-separated values (.csv)

※ See MRIDOC for MRI quality control procedures

#3.2 MRI Images

Description File Name  File Format（Extension）
Raw MRI Images obtained from MRI Scanners DICOM

#4. PET Scan (FDG, Amyloid (PIB, florbetapir, flutemetamol), Tau(flortaucipir))

#4.1 Quality Control

CRF Name CRF Description File Name  File Format（Extension）
PETQC PET Scan Information PETQC-AMED-Pre.csv Comma-separated values (.csv)

※ See PETDOC for PET quality control procedures.

#4.2 PET Images

Description File Name  File Format（Extension）
PET Images DICOM